Crohn's disease
Jacqueline
35 years old, NL
I have had Crohn's disease for ten years now. Six years ago, I discovered that
weed helps me a lot in suppressing symptoms like nausea, pain, and loss of
appetite- I also suffer from complications as a result of former operations,
which have caused adhesions and fistulas in my intestines. Because of this,
my food doesn't go through very well anymore. I often suffer from con-
stipation. I now smoke between eight and ten grams of my own homegrown
biological weed a day. This is the only option available for me at the
moment. S can't say that it removes the pain completely, but it does help me
deal with it in a better way.
Sometimes I will be sitting on the toilet while inhaling. If I don't manage
a bowel movement with one joint, my partner just walks in and brings me
another one! I did try medication on and off, but there isn't really any cure
for this disease.
My husband and I used to live in England, but we returned to the Nether-
lands after the birth of our child. Brian started growing our own plants, out-
side on our balcony. That's when I started smoking marihuana again. I had
smoked it, once in a while, since the age of fifteen, and discovered that it had
a very positive effect on me. I had already undergone surgery once by then.
By now I have had three operations. I stopped using the strong medication
a few months ago. The medicines made me very nauseous and very strange,
psychologically- They don't really help the symptoms of my disease, either.
I wasn't able to do the small things that I had been able to do before using
these medicines. I said to the doctor:"Sorry, but I'm not going to carry on
with this." The negative consequence of not using medicines anymore is that
I will probably have to undergo surgery again within a year.
There are a few other experimental medicines available, but they all come
with the usual side effects. But they don't consider giving me these medicines,
because apparently I'm not ill enough! So, I wonder, how ill do I need
to be? There is a new medicine that can be taken through a drip. I would
have to spend three hours a month in hospital attached to a drip. The following
three weeks you're 'on top of the world' but a week later you're three
times as ill. And you're bound to the hospital, because you have to keep
going back. Apparently, the medicine is made from the white blood cells of
mice and this could cause an allergy.
They also gave me morphine patches to combat the pain, but they turned
me into a zombie. They made me totally absentminded and very nauseous.
I admire people who are able to endure large amounts of medicines in their
bodies and still manage to function well. I was not able to do that, so I'd
rather smoke weed. I don't think that I would be able to take in solids if I
didn't smoke it.
Everything I eat, even if it's just a cheese sandwich, causes pain. All solids
cause trouble going through. Thanks to smoking weed, I manage to get it
through my system and have the necessary appetite. (I do have a bizarre
appetite though; I crave for the best and most expensive foods.) Smoking
weed also helps against nausea.
The health insurance company does not cover marihuana. They do compensate
part of my dietary costs, but that really isn't sufficient. I have regular
overdrafts at my bank now, because I spend more. But I don't really care, as
long as there is no bailiff at my door! Social services started giving me an
extra costs allowance at the beginning of this year. What I really wanted was
compensation for the maintenance costs of my 'garden', which ranges from
electricity costs to buying pots and compost and everything that goes with
it. Social Services received positive advice om my doctor and I received a
letter from Social Services stating that they didn't want to participate in an
illegal activity. However, much to my surprise, three weeks later I received
another letter from them, stating that they would give me an allowance for
extra nutrition!
I have increased my smoking throughout the years. When I found out that I
couldn't actually afford buying marihuana in coffee shops anymore, I started
growing for myself. But growing your own does pose some difficulties.
Friends often have to help me with cutting, potting the compost, basically
everything that is necessary to maintain a garden of your own, because I'm
often not in a position to do so myself-There are many things that I cannot
do the way I would like to. But I shouldn't complain, because I almost always
have enough to smoke, especially now that I grow my own weed.
The police tolerate it. They know that I grow weed and they also know
that I am very ill. The police have been to visit me twice. A neighbour had
informed on me-At first, I only had six plants inside and a few outside. They
told me that there should be fewer plants outside; I had to put them on
the balcony at the back, where they wouldn't cause a 'visual inconvenience'!
One neighbour says,'you have a wonderfully green balcony that looks great';
the other one calls it a 'visual inconvenience'. Now that my indoor garden
has grown, the scent is stronger than usual at certain times of the year. When
there is no wind, the smell floats down and reaches the front door so that
passers-by sometimes catch a rather strong whiff of it. The neighbours don't
appreciate this, so the police came again last year. I had just been given a new
prescription for marihuana and so I showed it to them. They asked me to
do something about the smell and to put fewer plants outside. I did that and
they didn't return for the rest of the year.
Some of my son's schoolmates' parents don't want their child to play at our
house, because they know that I smoke marihuana. I do not want to make
a secret of this. Everyone, om my social worker to my doctor, knows that I
smoke it. I don't mow what they say behind my back, but it doesn't interest
me either.
I am glad to be living in a country like Holland. My son helps me water the
plants and take care of them and finds the fact that his mother smokes weed
perfectly normal. When I am in pain he says,'Mum, light up a joint, or else
you'll end up grumpy too.' I also lived in England for a long time. There they
might arrest me and take my child away om me!
I smoke on the street, when walking, or at the tram stop. I often have a joint
in my hand and that sometimes causes strange reactions. People take a step
away from me, that kind of stuff. I've just developed a thicker skin. I don't
pay attention to it anymore.
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