Lewy Body Disease
Eda and Daniel De Jong
NL
This story concerns my mother-in-law, who is in her mid-70s now
critically ill and hospitalised. We all live in Amsterdam; she is from Istanbul. A
few years ago she slipped in the bathroom and broke her hip, and since then
she has gradually declined, losing her eyesight, immobilized, mentally deteriorating,
eating and drinking less and less. A few weeks ago the doctor and
nurses started to suggest euthanasia, and indeed it began to look as though
that decision might be a matter of days off.
We visit her often. She sometimes mumbles a few words, but since she is
fluent in five or more languages, it is difficult to know which one she is
speaking. If you repeat to her what you think you heard, her brief moment
of attention is already gone. You can never be sure that you have understood
what she may have said. She has long periods in which she moans and cries.
Her medication is either too light, in which case she is afraid and bewildered,
or too strong, which makes her very far away from anything or any-
body, including herself. There is simply nothing we can do.
Her condition has been diagnosed as Lewy body disease, a progressive
degeneration of the brain, which prevents the muscles from relaxing. Her
legs cannot be stretched any longer; she is like a piece of wood, with no Rexibility
in her body. She lies rigidly in bed, crying and moaning. It is horrible
and a torture for those who want to help her.
We have painful memories of how lively and full of interests and jokes she
was until recently, enjoying life in the company of her family and her many
friends. A few weeks ago we had had a serious talk with her neurologist.
My wife asked him whether marihuana could help. He said that he did not
know (thereby showing that he is open-minded), but that other patients had
not shown noticeable effects. He cited experiences with cancer patients and
also pointed out that medicinal marihuana was relatively expensive. Which
is funny in a country like Holland, where recreational varieties of excellent
quality are for sale in dozens of places at very competitive prices.
Probably the pharmaceutical channels are manned by very clumsy semi-
officials. I may go into this later.
Anyway, yesterday my wife decided that she could not stand the forced inactivity
any longer. She bought some hash cake that we had tried ourselves
and had found to be of a very good"head", as they say in Istanbul. She gave
some of it to her mother while I was busy in a conference with a client (I
am a lawyer).hen I arrived at the hospital later in the afternoon, I found to
my amazement that my mother-in-law was lying peacefully in bed, able to
talk clearly, laughing at things she liked, "in her own body", not wandering
mentally as she had been doing for weeks, and falling asleep completely at
ease. We could go with a good feeling; she was OX now. Of course, still ill
and maybe with not many weeks left to live, who is to tell? But an ally, in
the Castaneda sense, had been put to work and very well received. There
will probably be more to share in the future, but we want you to know
now about this very practical use of marihuana. We would be immensely
interested in comments, feedback, etc.
Greetings and we shall certainly overcome.
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