Rheumatism

Rheumatism   Pauline 2 years old, NL


My hands have been bothering me all my life. For a long time I had no idea what was the reason for this. I did visit a doctor once who gave me all kinds of exercises to do, but that only made it worse. My first son was born when I was 21 years old and, om that time on, I started having more and more pain throughout my body. Joints were getting dislocated and my body was not functioning well. I often asked the family physician what to do, because I was in so much pain. My legs hurt, everything hurt, I was desperate. The doctors said all kinds of things, too fat, too thin, exercise more, exercise less, look after yourself, don't pamper yourself. All kinds of possibilities were suggested. Then my fingers started growing crooked and they were dislocating all the time.

In the end, I was so sick and tired of it all that I went to the medical council of the health insurance company. My family doctor had refused to send me to a specialist, but in the end, the specialist arranged for me to come. I ended up in a hospital where they investigated my complaints. They told me I had rheumatism. I didn't really know what that meant, and couldn't form a picture of its consequences. It just hadn't dawned on me yet. At first, I was actually relieved because my condition now had a name, and people could no longer think that I was exaggerating and that nothing was the matter. But later on it did get more difficult, because I had to give the illness a place in my life. earning to deal with pain is very difficult. They gave me painkillers that helped in one way, but didn't in another because I suffered from their side effects. And I had to pay a lot for them because I always exceeded the insurance contribution limit. So life costs a lot more than when you are healthy-You become poor because you've lost the greatest wealth you possess: your health.

Physiotherapy only made me more miserable, because it caused even more pain. Painkillers make you more and more detached from the world and you can't function the way you usually do. When your feelings are suppressed, along with your emotions, it becomes very difficult to live with someone. Between them, the rheumatism and the medicines ruined my marriage. I had been smoking weed for years and realised that smoking had a relaxing effect on me when I was in pain. This made me feel better and also made the process of acceptance easier. My thought processes calmed down, which in turn caused my muscles to relax. The pain gets worse when your muscles are tense all the time- It is very difficult to rest your body when you have rheumatism and pain only makes you grumpy. The good thing about weed is that it offers relaxation without side effects and it cheers you up. So, it also does something for your love of life and that is very important. I also discovered that weed has a positive effect on my asthma. When I smoke weed, I don't feel short of breath for a while. I talked about this with a coffee shop owner and he told me about the possibility of getting weed more cheaply, but first I needed a written statement from my doctor.

The costs do add up when you need a gram of weed a day. In a household with children there isn't always money available for this. Having to suffer because you have no money to buy a healing product is beyond reason! This did cause problems for me, because I was willing to give up a lot in order to live without pain for a while, but I had to feed my kids as well. I wasn't really able to do anything with them while I was in pain, so I kept trying to balance things all the time, which put extra pressure on me too. Whenever I was on medication, I couldn't take as good care of my children as I was able to normally, because not only did suppress the pain, but my emotions, too, and made me drowsy. I felt as if I was walking on clouds. I couldn't react normally as the medicines were so heavy. I also couldn't express my emotions in a normal way. Some medicines made me calmer while others made me more aggressive. That was very difficult for my partner and children to understand. I also had a lot of spots and acne, something I'd never had before. I didn't even have spots during puberty, but now I was constantly covered in them. My body was being polluted by something that definitely wasn't natural. It was very hard to be a good mother while on medication. I did want to carry on bringing the children to school, cycling with them, taking them to their friends' houses, etc, but I was not able to do those things. When you have just taken a painkiller, you have to wait for it to work, till you are rid of the pain, but the pain only gets less acute, it doesn't disappear. I wanted to drive in traffic, but that isn't really advisable or even permissible when you are on heavy painkillers. Because of this, I was not able to do 'mummy and people things'. I had to go by bus, which may seem trivial, but it's annoying.

On the one hand, the medicines help a little, but on the other hand they don't really work properly.

Weed has only positive effects. Painkillers only have one positive side to them and that is that they reduce the pain a little, but that's all-Those medicines made my pupils larger. I am a mother who wants to pick her children up from school, but when people see someone with large pupils they think, 'this person is on drugs!' My whole appearance was different. While on medication I was dulled, slower to react, 'not there', forgetting things. I still use medicines once in a while when I am in pain and it does help somewhat. I hardy used any medicines during my pregnancy because I didn't want my child to absorb all those chemicals. Pain is something that can be so intense that you are willing to do anything to get rid of it. I would love to have no other treatment but smoking medicinal marihuana, but my insurance company would not pay for the costs, even though it would be a lot cheaper for them. If we could do that we, the patients, would need fewer painkillers, less day care and no psychiatrists because we wouldn't be upset about the things that we couldn't do anymore. I think that recognising this would be a major step forward for the health care companies and, of course, would make many people happier with their lives.

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